Weight is about 8 lbs 2 oz depends on which scale the Dr.s use. things are going well she got her 4 month shots the other day and her feeding pump keeps us up regurally. Other than that things are going great.
It's hard to believe how far she's come she will be 11 months on the 1st she now weighs 16 lbs 10 ounces. We still have a feeding tube that we use every feeding and probally will for a while yet, she is taking some food orally but on her terms "I hold the spoon and not the purple one I want pink". We have a physical therapist and a speech therapist come over to our house once a week to help with things like tummy time which she hates and keeping the oral aversion to a minimum. She had a hearing test last week Friday and everything went spectacular they put her out and hooked up a bunch of probes to her head and ran signals to her ears and read if the different nerves in her head were picking it up or reacting to the tones.
A whole year has gone by and WOW how fast did that go? I hear it only gets faster. We still have the feeding tube and will for a while she does eat some foods but not much still working on the food goes in the mouth and swallow thing. We tried to get a comparison picture with our rings but she kept trying to put them in her mouth then our luck she'd get that swallowing thing down then there goes our rings for a few days. So we did get one with the buzz cola can.